When a Misdiagnosis is the Difference Between Life and Death

There are three types of hereditary angioedema (HAE)—Type I, Type II, Type III.

Original, right?

obviously bird now free birds
Source: www.giphy.com

Type I and II are the most common types of HAE. Type III is the rarest, and the most fatal, in part because it’s not understood as well as the first two types.

Mareander, a woman from Bellingham, WA, drew the short straw when she was diagnosed with not only HAE, but type III HAE, as reported by the Bellingham Herald.

But not before suffering for years without answers. Swelling attacks would happen at any moment’s notice, and no matter how many times she sought medical help, doctors either didn’t know what to make of her or thought she was crazy.

Turns out, she wasn’t.

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Source: www.giphy.com

Sometimes, I think doctors will whip out the “crazy” card whenever they don’t have the answers. Doctors are used to being right, right? They’re used to being the smartest one in a room. God forbid they ever NOT have the answers, right? It would make sense that they’d blame it on the brain if ever they found themselves lost for words. Not all doctors, mind you, are this way.

But I can’t help but think… If doctors would just admit they don’t know everything, they might take the time to find out what their patients need. Wouldn’t that help save people from disheartening misdiagnoses? People like Mareander.

Mareander found answers not from a doctor, but from a friend who told her allll about HAE. Armed with information, she got herself diagnosed with type III HAE.

What’s unfortunate for people with type III is that treatments don’t work the same for everyone. What’s FORTUNATE is that Mareander has found a doctor, is on treatment, AND has a dog named Howard that looks after her. He’s actually been trained to alert emergency responders if ever Mereander has a swell.

Yosub dog cute jumping corgi
Can’t have your happy ending without your pup! Source: www.giphy.com

Mereander struggles to manage her HAE at times, but she does her best to keep hope alive.


What misdiagnoses have YOU run into? How do you think doctors should handle not having the answers?  Leave a comment below!

 

Lady Kehveen Abernathy

Lady Kehveen Abernathy

Lady Kehveen Abernathy, of noble birth (or so she’d like to believe), is what many would call a youthful “old soul.” As a self-proclaimed “caregiver to the world,” impassioned about life, triumph, and all things beauty, Lady Kehveen strives to love others, seek understanding, and most importantly, spread awareness. But don’t let her sweet demeanor deceive you. Dressed to the nines over corset and petticoat, she’s made it her mission to defend the innocent and fight all things evil on this Earth. And being no stranger to chronic disease, she knows exactly where to start.

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