Welcome back to Editor’s Choice Patient Worthians!
So sit back and enjoy this week’s Editor’s Choice!
This musician dad is doing something BIG for his daughter suffering from POTS.
Check out the story here.
PW writer Erica Zahn details her conversation with a woman suffering from narcolepsy.
Read here to become enlightened!
PW friend and ankylosing spondylitis warrior Charis is always trying to better the rare disease community.
Watch what she has to say during her TEDx talk here.
When I first read the name “Non-24 Hour Sleep-Wake Disorder,” I immediately felt like that name could be shorter… and also I had no idea what it was.
Find out about this rare disease and it’s tremendous challenges to support awareness and understanding!