Editor’s Choice: Sickle Cell Score and World PI Week Pets

Editor’s Choice: Sickle Cell Score and World PI Week Pets

Happy Friday Patient Worthians!

Did you know it was World PI Week this week? We have a post on the role pets have with PI. We also have a story on a sickle cell athlete.

What do you do when your child is born with DMD? Start a foundation of course! And lastly, we have an awesome blog repost from a #raredad.

So sit back and enjoy this week’s Editor’s Choice!

 

 

How This Star Athlete Scores BIG with Sickle Cell Anemia

This young man born with SCA symptoms is giving back to the SCA community.

Read more here.



Pets and PI: Tips for Making it Work

Primary immunodeficiency diseases make its patients more susceptible to infection.

Read how this woman was able to continue her passion for rescuing animals without putting herself in too much risk.



Duchenne Muscular Dystrophy Motivated These Parents to Start the Romito Foundation

Upon hearing the news that their son had DMD, Richard and Jamie Romito decided to do something about it… for everyone suffering from this devastating illness.

Check out what they’re doing here.



Progressive Shopping for Superheroes

This dad of a child with an incredibly rare disease is now working tirelessly to find treatment and cures for children with rare genetic diseases.

Read more here.


Jessica Gladwell

Jessica Gladwell is one of PW's consultants and patient editors. She has lived with late-stage, chronic Lyme and POTS since circa 2002. She has also served as a caregiver to close family members with late-stage, chronic Lyme. Before diagnosis, she served as a business consultant for a large corporation and PM for a small digital branding agency. Now, she is proactive in the rare and neurological disease community, spreading awareness and advising on matters of health and lifestyle when living with a chronic illness.

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