Editor’s Choice: Service Dogs and Legacies

Happy Wednesday!

As the new month begins, we want to spotlight four articles. First, we have an incredible story about a Cushing’s syndrome survivor and advocate and her talented service dog. Next, we have insightful words on adjusting to a rare disease from PW contributor Tom Seaman, followed by an interview with the mother of an ALD patient, who is fighting for her son’s legacy. Last but not least, we have news on an innovative cancer treatment.

Sit back and enjoy this week’s Editor’s Choice.


Her Rare Condition Revealed his Rare Ability: Amy and Sam’s Service Dog Story

A fortune teller, a street dog in Cyprus, and a Cushing’s syndrome surviver– this is one of our favorite service dog stories we’ve heard in a while.


I Needed to Accept Change to Better Cope with Dystonia

PW contributor Tom Seaman shares the journey he went through after he was diagnosed with dystonia. While he struggled with finding his life so fundamentally changed, he worked on approaching the situation from a different perspective.


Alexander Matthew’s ALD Story and Legacy: Part 1

After Alex was diagnosed with adrenoleukodystrophy (ALD), his family did everything in their power to treat him. Although he passed away, his mother Jhoanny, now works to help other families fighting rare diseases.


Breakthrough: FDA Approved Novel Treatment for Rare Cancer Tumors, Which Targets DNA

In the past, most cancer treatments have focused on combating the tumor. This novel approach focuses more on the DNA.

Do you have a rare disease experience of your own? Share with us here.

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