Editor’s Choice: Painters, Warriors, and Presidents of the Rare Community

Happy Wednesday!

With Hanukah wrapped up, and Christmas just around the corner, things are getting pretty crazy. Take a second to relax and check out these four stories.

First, we have a story about an artist raising awareness for her son’s rare condition, neurofibromatosis. Next, we have a contribution from a CIDP warrior on embracing life after a difficult diagnosis, followed by reflections on the late former President George H.W. Bush’s relationship to the rare community. Finally, we have a piece for people with EDS who are considering going to the chiropractor.

Sit back and enjoy this week’s Editor’s Choice.


“Many Faces of NF”: Artist Highlights Tumor-Causing Genetic Disorder

NF doesn’t receive a lot of attention, but artist and mother Rachel Mindrup is working to make it more widely known.


Meet Julie: A CIDP Warrior

CIDP changed Julie’s life in ways she never imagined, but she embraces each day as a blessing.


Remembering President George Bush and His Links to the Rare Disease Community

One part of George H.W. Bush’s life that isn’t discussed very often is his relationship to rare disease. However, it greatly impacted his family.


Are Chiropractors Safe for People with Ehlers-Danlos Syndrome?

If you’re looking into chiropractors to help with EDS pain, here are some things you should keep in mind

Do you have a rare disease experience of your own? Share with us here.

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