Editor’s Choice: Sea Sponges, Reality TV, and Rare Patient Opinions

Happy Thursday!

We hope everyone’s week is going well. Today, we’re highlighting a contribution from a cystinosis patient on the necessity of third-party medical providers. We’re also sharing a story about how a sponge may help people with ovarian culture, and an update on a Prader-Willi trial. Last but not least, we have an opinion piece discussing CF and the Bachelor.

Sit back and enjoy this week’s Editor’s Choice.


Third Party Medical Providers: a Necessity for the Right to Life

PW Contributor Rebekah Palmer explains why patients depend on third part medical providers.


New Discovery in Marine Sponge May Lead to a New Ovarian Cancer Treatment

Ovarian cancer has notoriously low survival rates- could this research help lead to a better prognosis?


Phase 2a Prader-Willi Syndrome Trial Enters Open-Label Extension

Following along with this PWS clinical trial? Here’s an update.


I’m Glad The Bachelor is Bringing Attention to Cystic Fibrosis, But I’m Probably Not Donating to Colton’s Foundation

This year’s star on the Bachelor started a foundation to support Cystic Fibrosis. Some people have been asking: how effective is this organization?

Do you have a rare disease experience of your own? Share with us here.

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