Editor’s Choice: CIDP Diagnosis Struggles and Rare Cancer Survivors

Hope everyone’s week is going well!

Today, we’re highlighting an article discussing the difficulties of securing a CIDP diagnosis, followed by an update on a Niemann-Pick Type C treatment. Next, we have a story about a man who survived a diagnosis despite all odds, and a family in the EU fighting for treatment.

Sit back and enjoy this week’s Editor’s Choice.


Why is it Difficult to Diagnose Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)?

People with rare diseases and conditions often have to go on long, trying journeys to find answers. CIDP can often be mistaken for a more common disorder.


Possible Treatment for Niemann-Pick Disease Type C Performs Well in Clinical Trial

Niemann-Pick Disease is a particularly difficult diagnosis. Fortunately, there is recent treatment news.


Man Diagnosed with Neuroendocrine Cancer of Pancreas Celebrates Life Six Years Later

It’s easy to lose hope after hearing a frightening diagnosis. A man who was diagnosed with what was expected to be terminal cancer six years ago, shares his story to help those who are newly diagnosed.


Pierre Robin Sequence Parents Forced to Fight for Access to Treatment in EU

What would you do if there was a treatment that could help your child, but you couldn’t access it?

Do you have a rare disease experience of your own? Share with us here.

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