Editor’s Choice: Do You Think This Was Rare Disease Discrimination?

Happy Thursday!

Today, we’re highlighting an article on a story about rare disease discrimination, followed by news about a musician who went public with a rare diagnosis. After that, we have updates on Duchenne muscular dystrophy research, and a useful diagnostic tool.

Sit back and enjoy this week’s Editor’s Choice.

 

Legendary Guitarist Peter Frampton Announces Inclusion Body Myositis Diagnosis

Rare disease can affect anyone– here’s one story of it impacting a high profile musician.

 

Mother and Child Kicked off American Airlines Flight Because of Their Ichthyosis

Their condition isn’t contagious… so why was this mother and child duo kicked off their flight?

 

New Tool Has the Potential to Identify the Genetic Causes of Rare Diseases

Receiving an accurate diagnosis is a challenge throughout the rare disease world. This tool might help.

 

CRISPR Successfully Treats Duchenne Muscular Dystrophy in Mouse Model

While it’s a long way from human approval, this DMD treatment shows promise in mice.

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