Ehrlichiosis
Doctors may be Overlooking Ehrlichia Infection When Testing for Tick-Bourne Illnesses
A study carried out by researchers from the University of North Carolina at Chapel Hill suggests that doctors in the state may not be
Rare Patient News. Well Done.
Rare Disease Similar to Polio Appears in Minnesota
Hannah Amelia Evans: a 27-Year-Old with EDS, POTS, MCAS, and Blood Cancer Fundraising for Treatment in the USA
October is Castleman Disease Awareness Month!
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Cancer
New Drug Could Be The Penicillin of Cancer?
LiPlaCis is a formulation of cisplatin that delivers its agent directly to cancerous tumor sites. Its efficacy has so far only been studied within breast cancer patients.
Anal Cancer
Desperate Housewives Actress Marcia Cross Says She Feels “Liberated” After Sharing Her Battle with Anal Cancer
Actress Marcia Cross, best known for her role as Bree Van de Kamp on Desperate Housewives, has shared that she is now healthy after battling
Beta Thalassemia
A Marketing Application for the Gene Therapy LentiGlobin as a Treatment for Beta-Thalassemia is Being Reviewed in Europe
According to a recent press release from Bluebird Bio, the European Medicines Agency has accepted and will review their marketing authorization application (MAA) for the
Glioblastoma
Treatment For Glioblastoma Gets Orphan Drug Designation
According to a story from MarketWatch, the biopharmaceutical company MediciNova recently announced that the company’s product ibudilast was granted Orphan Drug designation by the FDA.
Rare Disease
Plans for a Clinical Trial of Coversin in Patients With Thrombotic Microangiopathies Have Been Announced
A drug called Coversin is being investigated as a potential treatment for four orphan diseases: bullous pemphigoid (BP), atypical keratoconjunctivitis (AKC), thrombotic microangiopathies, and paroxysmal
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