Born A Hero works to empower children suffering from Pfeiffer Syndrome, by both trying to improve the quality of life for those affected and by educating the world so that others recognize that these children are heroes. Born A Hero sheds light on the medical and social issues surrounding Pfeiffer’s syndrome and shares relevant events and other supportive resources with the community.
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!