Danny’s Dose
Danny’s Dose was founded by Darlene Shelton, the grandmother to a wonderful little boy with Hemophilia, Danny, who is the heart of Danny’s Dose. Danny’s Dose strives to prevent morbidity and mortality for the population of people with rare disease, chronic illness and special medical needs, who require specialized treatment and/or receiving their patient carried specialty meds in emergencies. They do this through:
- Informing Americans of the oversight in our emergency medical protocols;
- Protecting the individuals who can be harmed or loose a life due to improper or delayed treatment;
- Protecting those Paramedics and Doctors who are forced to make a decision of following a “rule” or “regulation” over saving joints, muscles, organs, and lives;
- Being the driving force in building teams in every state to stand and be heard;
- Seeing these PROTOCOLS amended one state at a time; preferably not by legislation unless absolutely necessary
- Seeing these PROTOCOLS amended also on the national level;
- Providing education to families in Emergency Planning and provide Emergency Alert products for their protection
- Raising awareness to the Medical Association so they can help educate patients and families
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on Hemophilia, Hemophilia A, Hemophilia B
Rare Disease and Personal Identity: Why This Hemophilia Patient Isn’t Interested in a Cure
According to a story from The Atlantic, the continual development of gene editing technologies like CRISPR have the potential to cure a substantial portion of
Preliminary Data from a Phase 1/2 Study of a Gene Therapy for Haemophilia A has been Shared
Sangamo Therapeutics has shared details of their preliminary data from a clinical trial of the investigational drug SB-525 in patients with Haemophilia A. For more
Cryo-Electron Imaging Provides New Info About Virus Vectors in Gene Therapy
According to a story from EurekAlert!, a collaborative team of researchers from the University of Florida and The Salk Institute are using cryo-electron microscopy in
Cell Encapsulation Technique That Could Treat Glaucoma and Hemophilia May Make Insulin Injections a Thing of the Past
According to Science Blog, a therapeutics company is on its way to creating an implantable, insulin-producing device that may give injections a run for
Assistance Fund Launches Financial Support for Hemophilia
According to information provided by the National Hemophilia Foundation, people living with hemophilia now have the opportunity for a greater level of financial support. This
Is Fetal Gene Therapy the Cure to These Rare Diseases?
Scientists are researching the possibility of fetal gene therapies as possible cures for rare diseases, such as Duchenne muscular dystrophy, hemophilia, sickle cell disease, and
